The Guardian view on A-list fundraising: hogging the Lyme light | Editorial
Fashionable diseases get more money but unfashionable ones affect many more people
Few had heard of Lyme disease – a relatively rare tick-borne illness – until it burrowed its way on to the A-list. In 2015 it was revealed that the fashion model Bella Hadid had the disease; that same year Avril Lavigne’s Lyme diagnosis appeared on the cover of People magazine under the headline “I thought I was dying”. In 2016 Kris Kristofferson discovered that the memory loss he had been suffering in recent years was not due to Alzheimer’s but to Lyme disease. And this week news that the former England rugby player Matt Dawson also suffers from the condition dominated headlines. (In a recent memoir, Kelly Osbourne said that she had kept quiet about her Lyme disease because she feared it had become “the trendy disease to have right now”.)
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Where once Lyme produced little interest and less cash, it is now the focus of high-profile fundraising galas and celebrity news. The Global Lyme Alliance, an American non-profit organisation, has said A-list interest is “essential” for raising money. Increased public awareness of the condition has helped too: rapid treatment with antibiotics is vital, and the early signs of Lyme disease – a tick bite and a circular rash – are easily missed.
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